My Desmoid Journey

Hiking in Boulder, Colorado

At the age of 25, I was diagnosed with a rare, but aggressive, benign tumor that is not yet treated by a standard protocol. When surgery failed and the tumor returned less than a year later, the search for an effective treatment plan began. Trial and error ensued as the tumor continued to grow.

As days passed and my mobility began to deteriorate, I realized something had to change. I reached a breaking point and sought a new team of healthcare professionals. Within six months, it was confirmed that the treatment was working, but the journey was far from over.

To this day, the journey continues. It’s a daily fight worth fighting.

I wouldn’t be who I am today if I hadn’t received my diagnosis. And while I wouldn’t wish the same diagnosis on anyone, I am grateful for the lessons I have learned along the way.