Coping with the Weight of Words and Invisible Illness (And What Actually Helps)

Coping with the Weight of Words and Invisible Illness (And What Actually Helps)

Words hold weight. If you live with a chronic illness or rare disease, you may have felt the lasting sting certain words can leave while also experiencing the undeniable hope offered through words when you’ve needed them most. Words can both hurt and heal while navigating an invisible illness.

What words help (and which ones don’t) for those with invisible illness? Read the post.

Living Life with a Rare Disease | A Look Back on the Last Year

Living Life with a Rare Disease | A Look Back on the Last Year

A lot can happen in a year, and seemingly nothing at all.

It has been nearly one year since my MRI revealed tumor growth post-chemotherapy treatment.

While I’ve been open about my journey throughout the years, I haven’t shared much publicly since that day. No concrete path upon which to tread has left me needing some space to process each component of this ever-evolving story.

Today, I’m offering a glimpse behind the scenes into what life with a Desmoid tumor has held this year.

The Courage of New Beginnings

The Courage of New Beginnings

Courage isn’t something we keep stored away in a warehouse. We can’t stockpile it. It’s something we seek when faced with danger, fear, or challenge.

What springs to mind when you think of courage? Do you think of times when you’ve had courage or times when you’ve lacked it? Do you look to others for it? Is courage something you’ve desired, but often feels out of reach?

All of our new beginnings require courage.

What beginning are you facing? The beginning of a new form of treatment? The beginning of the end of a relationship? The beginning of grief?

Pause to reflect on the courage you will need as you enter a new beginning.

The Power of Naming Our Fears

The Power of Naming Our Fears

We can’t deal with what we won’t acknowledge.

We aren’t meant to stuff our fears. We aren’t meant to pretend they don’t exist. We can welcome our fears as a way to uncover a deeper truth about ourselves. Fear doesn’t have to be the enemy. Naming our fear can help lead us out of the valleys we encounter and into the light.

When Trusting Your Next Step Doesn’t Come Easily

When Trusting Your Next Step Doesn’t Come Easily

Throughout the years, I’ve had to make some hard medical decisions—very few of which have left me feeling confident about the path ahead.

+ Am I making the right decision?
+ Is this what is best for my future?
+ What if things don’t turn out as planned?

Easy answers to these questions aren’t common, but time has taught me that while I might not always make the right decision, I can trust God will always walk with me through the next step.

The Power of Being Still as You Walk Toward Healing

The Power of Being Still as You Walk Toward Healing

“How often are you still?”

The question caught me off guard. “I’m still all the time,” I answered. “When I’m reading, spending time in the Word. I’ve started to sit and listen to music while I work on a paint by number. I’m actually still more than I realized!”

“No, I mean truly still. Doing absolutely nothing. When do you allow your mind and body to be still?”

After a lengthy pause, “Oh, never.”

After that conversation, it didn’t require much energy to uncover just how much effort I unintentionally put into evading stillness. It became apparent that I struggle to do nothing, to simply be. But I couldn’t really pinpoint why.

As someone who believed they were incorporating the practice of stillness into their life, I started to pay attention to why I had unintentionally started avoiding it.

As I began to take note of the lack of stillness in my life, I discovered I had been confusing stillness with rest.