Coping with the Weight of Words and Invisible Illness (And What Actually Helps)

Coping with the Weight of Words and Invisible Illness (And What Actually Helps)

Words hold weight. If you live with a chronic illness or rare disease, you may have felt the lasting sting certain words can leave while also experiencing the undeniable hope offered through words when you’ve needed them most. Words can both hurt and heal while navigating an invisible illness.

What words help (and which ones don’t) for those with invisible illness? Read the post.

Living Life with a Rare Disease | A Look Back on the Last Year

Living Life with a Rare Disease | A Look Back on the Last Year

A lot can happen in a year, and seemingly nothing at all.

It has been nearly one year since my MRI revealed tumor growth post-chemotherapy treatment.

While I’ve been open about my journey throughout the years, I haven’t shared much publicly since that day. No concrete path upon which to tread has left me needing some space to process each component of this ever-evolving story.

Today, I’m offering a glimpse behind the scenes into what life with a Desmoid tumor has held this year.

When Trusting Your Next Step Doesn’t Come Easily

When Trusting Your Next Step Doesn’t Come Easily

Throughout the years, I’ve had to make some hard medical decisions—very few of which have left me feeling confident about the path ahead.

+ Am I making the right decision?
+ Is this what is best for my future?
+ What if things don’t turn out as planned?

Easy answers to these questions aren’t common, but time has taught me that while I might not always make the right decision, I can trust God will always walk with me through the next step.

Loved for a Lifetime: My Story of Pregnancy Loss

Loved for a Lifetime: My Story of Pregnancy Loss

Before I even opened my eyes, the knowing was there.

“I’m pregnant.”

Some call it intuition, others God’s voice—this deep knowing we experience on the rarest of occasions.

We are left with an unshakeable assuredness—a knowing of what’s true before the data is there to back it up.

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Learning to Wait When Our Longings Linger

Learning to Wait When Our Longings Linger

Purple crocuses pop against the backdrop of the dormant blades of grass—a sign that spring is on its way. Layers begin to shed as buds form on trees, and tulip and daffodil leaves miraculously sprout through the once hardened earth. Hope is palpable as new life slowly begins to surface and spring makes her debut.

The new life reminds us that nothing lasts forever. Seasons change. And the wait is always worth it in the end.

In life, winter seasons linger longer than we’d like when our longings go unmet. We fail to find hope as we grow weary and restless in seasons of waiting, but in the wait—no matter how long it stretches on—we can find the strength to endure knowing that God does not abandon us.

God with Us: Finding God in the Day-to-Day

God with Us: Finding God in the Day-to-Day

Since I was a young girl, I knew who God was and what it meant to be in relationship with Him. Throughout my childhood and young adult life, I’d built a relationship with Him—always eager to learn more, to find ways to connect with Him. What I knew, but never really experienced until I had to battle my health daily, was the gift of His presence.

The following is an excerpt from the ebook, Ungrounded: A Companion for Pausing in God’s Presence.